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LIVING WITH A NEUROLOGICAL CONDITION IN THE WESTERN ISLES

There are over 600 conditions affecting the brain, spine and nervous system with many being degenerative and presently not having a cure. For more information about the range of neurological conditions please click on the link below

 

https://www.thebraincharity.org.uk

The Neuro Hebrides team are not medical experts, but we have a good understanding of the challenges of living with a neurological condition in remote island locations. Please get in touch with your GP, in the first instance, if you have any medical concerns.

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More common conditions include:

  • Multiple sclerosis (M.S.),

  • Parkinson’s

  • Motor neurone disease (MND),

  • Myalgic encephalomyelitis (M.E.),

  • Fybromyalgia

  • Epilepsy

  • Migraine

 

to the less well known ones such as

 

Functional Neurological Disorder (FND)

Guillain-Barré syndrome

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CLICK HERE to see a diagram that shows the prevalence of some of these conditions in the Western Isles (information received from Western Isles Health Board):

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Please note that you will find dementia and stroke listed as neurological conditions. However, Neuro Hebrides does not provide services for these conditions as there are two excellent charities that give specialist support in the Western Isles, Alzheimer’s Scotland and Chest Heart and Stroke Scotland. More information about these charities can be found at

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https://www.alzscot.org/findsupport and https://www.chss.org.uk

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Neuro Hebrides’ main aim is to focus on the common symptoms affecting daily life and the shared experience of our members rather than to be condition specific.

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Common symptoms may include the following:

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  • Fatigue

  • Pain

  • Insomnia

  • Bladder and bowel issues

  • Speech and swallowing difficulties

  • Affected vision and hearing

  • Cognitive impairment or brain fog

  • Loss of balance and coordination

  • Reduced ability to walk or mobilise

  • Low mood and heightened emotions

  • Anxiety and depression

  • Sensitivity to light, heat, noise or touch

  • Muscle weakness and spasticity

  • Spasms or tremors

  • Tingling sensations or numbness

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Shared Experience may include the following:

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  • Difficulty accessing local specialist NHS care

  • Stigma of living with seen and unseen disability 

  • Social isolation and loneliness

  • Relationship issues

  • Barriers to education or employment

  • Inadequate housing 

  • Applying for benefits and dealing with bureaucracy

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Neuro Hebrides is here to help you so please do get in touch.

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